https://www.statnews.com/2018/06/05/right-to-try-compassionate-use-pharma-compliance/ Not a good look Shire.
all I can say is wow. I guess I shouldn’t be surprised but there’s always been a sliver of hope that Shire would do the right thing, obviously not for the employees but at least for the patients.
“All of our efforts to get answers from Shire have been repeatedly rebuffed with vague, unsatisfying responses, leaving me to wonder why the company is denying my daughter’s only hope. In fact, Shire has refused to correspond with me directly”
This is so embarrassing. I can’t believe Shire would just blow off this little girl like that. Wow.....
As if I needed another reason to be less proud of the company I work for, here it is. Management should be ashamed of themselves, but they are too busy lining their pockets with money from this upcoming merger.
for those of you who can’t see past your nose about granting a drug to one patient out of 60. Step 1: grant little girl drug Step 2 : 59 other applications come in. Step 3 : now have to grant the other 59 patients drug because you did for the first one and how do you choose which patient gets it and which does t Step 4: phase 2 trial gets zero (or very low) enrolment because your just put every patient on the drug. Step 5: drug never makes it to market.
So I’m curious- what would happen if it was Flem’s little girl or a board member daughter, would they get the drug. I’m guessing yes.
Agreed, Last I checked Shire was not a charity and the entire rare disease BU works through high cost investment being distributed over small number of patients.
Last time I checked, the majority of shire employees think senior leadership is shit. Last time I checked wall street thinks this company is shit. Don’t preach patients first when you do nothing to help the patients that need help. If she was from the Canary Islands I’m sure phleming would have helped her
Wait a second...I thought we were supposed to be as brave as the patients we serve. Did the mission statement finally change to reflect our true culture? If so I have an idea, “fuck the patients and fuck the employees, now go get your shine box.” It’s my first attempt but would take any suggestions.
