Saving Jack - your CEO shows his true personality...

Agreed! So it looks like it can be done...too bad we can't follow their example. Sad for Jack and his family. I have an 8 year old little boy and I can only begin to imagine the pain they mus be feeling knowing that their little boy is going to die and that it could have possibly been prevented

 

yes it can be done...another company did it

http://www.cnn.com/2014/03/11/health/josh-hardy-drug-study/index.html

 

An FDA policy known as "compassionate use" allows someone with a serious or life-threatening disease to ask a drug company for an experimental drug. Companies often say yes: The FDA approved 974 compassionate use arrangements in fiscal year 2013....

 

Doesn't surprise me that Shire is refusing to help this child. This seems like a perfect opportunity to show Shire's so called "BRAVE" values.
Come on Shire- Be as BRAVE as the people you help!

 

The coward is still acting like a coward.

 

Get a clue. You have no idea what your talking about.