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  #1  
Old 05-29-2007, 09:36 AM
Anonymous
 
Posts: n/a
Exclamation Acthar Price Increase $23K a Vial

Now we are talking

In the end, this will really benefit the patient - trust us
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  #2  
Old 05-29-2007, 09:56 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Is this public knowledge or just a guess?
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  #3  
Old 05-29-2007, 11:27 PM
Anonymous
 
Posts: n/a
Lol Re: Acthar Price Increase $23K a Vial

i doubt any company is going to increase the price of a vial over 1000%!!!! get a clue. if a patient can afford to pay $23K a vial, they can cut out the middle man and buy Questcor.

i hear Doral is going to go up to $2250 per pill!!! it's much more expensive than ambien or lunesta but the unique qualities of this long acting benzo help justify the cost.

thanks for the great insight
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  #4  
Old 05-30-2007, 08:49 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Hey smarty person, then you must not know much about Acthar Gel. That was the whole idea on getting the FDA approval for IS, to raise the price. Do you think Questcor was going to make a profit on Acthar Gel by increasing the usage of it in IS? It is used first line now. Questcor was going to take advantage of the Orphan Drug Status that Acthar Gel has in the IS market. Funny person. You better believe a company will increase the price of a drug by 1000% if it will be used regardless. Nice insight!
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  #5  
Old 05-30-2007, 09:54 AM
Anonymous
 
Posts: n/a
Banghead Re: Acthar Price Increase $23K a Vial

Hey dummy person. I do happen to know a lot about Acthar Gel but you must not know a lot about pharmaceuticals, or a free market society for that matter. If QSC charges $23K a vial do you really think any insurers are going to cover it? Once word gets out about that ridiculous price, doctors are going to turn to other options. You may not be able to grasp this idea but there are other meds being used for IS. Thanks again for all of your great insight. You may want to submit your resume for the CEO opening!
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  #6  
Old 05-30-2007, 11:12 AM
Anonymous
 
Posts: n/a
Jester Re: Acthar Price Increase $23K a Vial

Hey smarty man, I never said 23k was the price for a vile, we were talking about 1000% increase which would be around 16000. And yes I do believe insurances would cover this cost due to the nature of the disease. And yes other drugs are used for treating IS but there are only two that have a 50% or better effective rate. Can you name them? When IS is diagnosed the physician will treat the patient until resolved. Acthar Gel will be used regardless of price if the doctor wants to use it. The government might have something to say. I do not agree with the raising price of Acthar Gel, but if my child had IS and the doctor said this was our only alternative, you bet I would pay and my insurance would cover it. Thanks for your insight.

Dummy Person
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  #7  
Old 05-30-2007, 01:59 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Cost is not the issue!! Unemployment is!! Smarty and Dummy!
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  #8  
Old 05-30-2007, 03:48 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Cost is the issue, that is why you're unemployed.

Dummy
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  #9  
Old 05-31-2007, 09:24 PM
Anonymous
 
Posts: n/a
Party Re: Acthar Price Increase $23K a Vial

Questcor Pharmaceuticals:

http://static1.grsites.com/archive/s...sc/misc248.wav
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  #10  
Old 08-28-2007, 12:05 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Yes the cost did go up and NO the insurance company has now decided NOT to cover it!! So now MY question is what about these poor infants that are on this for IS and can't get it. It isn't good to quit this cold turkey. This is just sooo wrong!
You can say if your child had IS you would pay for it and your insurance would pay but the insurance companies are now refusing to pay and at $25,000 for one vial that would last two weeks ... Who can afford to pay the price out of pocket??
If anyone has any ideas of help to pay or actual information what to do next please post helpfull info.
Thanks
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  #11  
Old 08-28-2007, 01:15 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Who says insurance companies aren't paying for it ?
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  #12  
Old 08-28-2007, 03:52 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

The CN's of the world will only now use ACTH if it is covered. That's a big if. Ovation must be throwing a "look how f'ckin stupid Questcor looks now" party. This is why pharmaceutical companies get a bad rap. I would hate to still be part of that cluster f'ck right now.
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  #13  
Old 09-13-2007, 07:08 PM
Anonymous
 
Posts: n/a
Party Re: Acthar Price Increase $23K a Vial

Wrong way to look at it. Ovation has got to be saying "look how smart Questcor is now. They have reset the pricing level for Is drugs." And maybe they can actually make money for once instead of going bankrupt."
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  #14  
Old 09-13-2007, 10:48 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Wrong way to look at it. Ovation has got to be saying "look how smart Questcor is now. They have reset the pricing level for Is drugs." And maybe they can actually make money for once instead of going bankrupt."
This poster is obviously one of the only eight people in the world that would try to sell this bullshit. Since they are not able to sell between 8-5, they'll try it here.
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  #15  
Old 09-14-2007, 07:05 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Wrong way to look at it. Ovation has got to be saying "look how smart Questcor is now. They have reset the pricing level for Is drugs." And maybe they can actually make money for once instead of going bankrupt."
Thanks TG!
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  #16  
Old 09-14-2007, 09:45 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

How annoying are the sales meetings now. TG flapping her mouth and shaking her rack. Good times in Union City!
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  #17  
Old 09-14-2007, 03:41 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

I feel for you. Do you think TG's rack is real?
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  #18  
Old 09-14-2007, 07:56 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

are you serious? Real? They point due north. That is not natural for a chick in her late 40's.
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  #19  
Old 09-16-2007, 02:30 AM
Anonymous
 
Posts: n/a
Worried Re: Acthar Price Increase $23K a Vial

Questcor DID raise the price of its medicine. It DOES affect real people. My nephew was diagnosed with a rare disease: Infantile Spasms. Acthar is a medicine that can save his life. However, we can't pay for it. The insurance company isn't paying for it either.

http://cbs4denver.com/topstories/loc...245214120.html

Please feel free to comment back to me.
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  #20  
Old 09-17-2007, 12:17 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Questcor DID raise the price of its medicine. It DOES affect real people. My nephew was diagnosed with a rare disease: Infantile Spasms. Acthar is a medicine that can save his life. However, we can't pay for it. The insurance company isn't paying for it either.

http://cbs4denver.com/topstories/loc...245214120.html

Please feel free to comment back to me.
You'll be glad to know, then, as a follow up to the story you posted above, the family was able to get the drug through insurance for a $25 copay (yes, that's 100 quarters). Link below...
http://www.kktv.com/home/headlines/9606682.html
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  #21  
Old 09-17-2007, 10:38 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

You should communicate with your family more. Or are you the embarrasing uncle who gets drunk at the family reunions every year. In any case, we still get our 23k per vial and your family gets what they need. Stop bitching about things and let me go see if my stock options have increase in value over the past 5 minutes.

Kind regards,

The Questcor BOD
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  #22  
Old 09-19-2007, 07:54 PM
Anonymous
 
Posts: n/a
Banghead Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
You'll be glad to know, then, as a follow up to the story you posted above, the family was able to get the drug through insurance for a $25 copay (yes, that's 100 quarters). Link below...
http://www.kktv.com/home/headlines/9606682.html
HOWEVER, CuraScript did NOT follow through with their promise. They sent a letter stating it would be $25 ONLY if the insurance paid them, which they won't. We are back to square 1 raising money to pay the Questcor SOBs money to save Tyler's life.
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  #23  
Old 09-19-2007, 07:56 PM
Anonymous
 
Posts: n/a
Banghead Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
You should communicate with your family more. Or are you the embarrasing uncle who gets drunk at the family reunions every year. In any case, we still get our 23k per vial and your family gets what they need. Stop bitching about things and let me go see if my stock options have increase in value over the past 5 minutes.

Kind regards,

The Questcor BOD
I do communicate with my family. However, I have been busy with things FAR more important than watching arrogant people post on here. You can use profanity, but it still doesn't change the fact if the families can't afford it, the child dies. It is a LOT different when it is your child, and not someone elses.
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  #24  
Old 09-19-2007, 11:25 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Please people, lets keep this thread open for serious discussions only.


Was that Godwin getting tazed at the John Kerry presentation in Florida?
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  #25  
Old 09-19-2007, 11:32 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

"Hey man, you don't have to use the taser!"

- Godwin
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  #26  
Old 09-20-2007, 12:21 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
"Hey man, you don't have to use the taser!"

- Godwin
I think it went something like this....


"Bro, don't taz me........aaaaaa..aaaaahhhh....aaaaaaaaaaaaaaaahhh hhh"

-Godwin
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  #27  
Old 09-25-2007, 03:55 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

When St Peter gives me the thumbs down and I go sliding into the fiery pits of hell, I hope that I don't come across the incompetent, greedy, hypocrites that call themselves affiliates of questcor. How embarrassing it is to have had my professional reputation tarnished by such blatant corruption which I still must answer for even though I have moved on to a different organization whose own petty issues pale in comparison to the lump in my throat when recently I had to explain to a former customer that they too could no longer get Acthar for patients in need because of the hey let's stick a fork up the asses of insurance companies and smile mentality adopted by these wall street wannabes... And we wonder why healthcare in the u s a is so f#$##d up. And boy what a nice line of b s that acthar is expensive. Perhaps if they didnt spend all that dough on video production and expensive wine at last year's p o a they might have had some left over. Drop dead you nitwits.
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  #28  
Old 09-25-2007, 09:42 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

I'm sure St. Peter is still going to give you the "thumbs down" because you are a crook. You steal from your current company by sitting on cafepharma and posting crazy comments at 3 am and not putting in an honest day's work the next day. You're probably drunk or sneaking away from your spouse for some online chats with underage kids. I'm sure you'll sleep it off until 10 or 11, take a shower, make one call, and then call your boss with stories about how great your day is going. That's not a lump in your throat....it's call dry mouth from sucking down a 6 pack of cheap beer and a warm box of wine. Pull your pants up and get on with your life.
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  #29  
Old 09-25-2007, 08:31 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

[quote=.How embarrassing it is to have had my professional reputation tarnished by such blatant corruption which I still must answer for even though I have moved on to a different organization whose own petty issues pale in comparison to the lump in my throat when recently I had to explain to a former customer that they too could no longer get Acthar for patients in need because of the hey let's stick a fork up the asses of insurance companies and smile mentality adopted by these wall street wannabes...[/QUOTE]

88 words in this boring run-on sentence. Damn, throw in a comma or a period somewhere if you expect anyone to get through this crap.
But seriously, I hope your professional reputation isn't tarnished to point that you can't respectfully bring lunch to your future offices. Good luck.
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  #30  
Old 09-25-2007, 11:55 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
88 words in this boring run-on sentence. Damn, throw in a comma or a period somewhere if you expect anyone to get through this crap.
But seriously, I hope your professional reputation isn't tarnished to point that you can't respectfully bring lunch to your future offices. Good luck.
TG, go back to your hole and shut your trap. Your husband is in the middle of drilling some flight attendant during his layover.
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  #31  
Old 10-03-2007, 05:52 PM
Cathedra Cathedra is offline
cafepharma newbie
 
Join Date: Oct 2007
Posts: 1
Thumbs down Re: Acthar Price Increase $23K a Vial

My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.

Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/
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  #32  
Old 10-03-2007, 08:59 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Cathedra View Post
My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.

Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/
As a former employee of this company(I left on my own), I share the same outrage as you do. In the past, Questcor had been a company that really cared about the patients. This is especially true with pediatric patients in need of ACTH. If you asked any pediatric neurologist, 99% of them would have told you the same thing.

However, this company no longer cares about these patients. The drastic price increase is a big part of the problem. The senior leadership is a bigger part of the problem. Their main concern is lining their pockets with proceeds from their hundred's of thousands of stock options they have accumulated. When they say they won't be able to produce the product because of the cost/revenue, they are lying. The previous company that owned the product said the same thing and the FDA stepped in to assure the production.

It comes down to the greed of the decision makers at Questcor. Most of the remaining employees I used to work with are sick about this price increase and blatent disregard for the patient. My suggestion to you would be to talk to NORD (National Organization of Rare Diseases). They are a group that truly cares about patients like your daughter. Best of luck to you and your family. I can only hope and pray that your child gets what she needs.
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  #33  
Old 10-04-2007, 12:09 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Cathedra View Post
My beautiful grand-daughter, Zoe, has now been denied her medication
Acthar ACTH.

Here is what happened and is going to be an on-going saga of trying to
keep her alive.
She has to ave the medication DAILY. OR, her immune system
attacks her brain. Without the medication, this beautiful little girl
will end up a vegetable and die, rather quickly.
The daily medication works. She is 2 and a half and it has been working
VERY well. Apparently Questcor decided that MILLIONS AND MILLIONS was not enough money.
Questcor also did away with the FDA approval for this medication. (MORE MONEY FOR Questcor). Questcor increased the price of the medication to like $65,000.00 per MONTH, vs the $6,500.00 it cost before.. (more money for
Questcor) Fired a great deal of their employees. (uh,more money Questcor). Said it wasn't worth it, cause they weren't making enough money.
There is NO other company that makes the medication. No generic.
And IMAGINE THIS, now the Insurance Company will not pay the ENORMOUS
amount of money Questcor is charging for this drug. And they say they don't
have to, because NOW, it is not FDA approved. (although it HAS BEEN,
before this black-hearted company changed the rules, raised the price
and said so what.....too bad, so sad.
That means only those people who can afford the $65,000.00 a MONTH Price tag are allowed to live, while this company reaps a 1000 PER CENT PROFIT,
at the expense of young children, including my beautiful granddaughter.
Why has this cold-black-hearted opportunistic company decided their profits are more important than the life of my granddaughter? She, at least is an innocent.
IF THIS MEDICATION SAVES THE LIFE OF JUST ONE CHILD, IS IT NOT WORTH
IT??? WHAT KIND OF DEPRAVED MURDEREROUS, GREEDY, MONEY HUNGRY COMPANY WOULD DO THIS TO INNOCENT CHILDREN? HOW CAN THESE PEOPLE SLEEP AT NIGHT????????? Look at themselves in the mirror?

Not to mention the insurance company, who WILL NOT pay for the medicine
either. (at the new way-inflated rate.) the insurance company decided
to give my granddaughter one month's supply (three vials), but would
only give her two of them so they have ONLY a 2 1/2 week supply of this daily med. Obviously we, nor my son are able to pay $65,000.00 a month to keep this beautiful, beautiful, darling, funny, very intelligent child alive.
My son and daughter-in-law are SICK over this. (and she's pregnant and
NOT feeling well herself) They have two older children 6 and 5. Medical
bills that will NEVER be paid off, they are so high. They struggle on a
daily basis. Not only are they helpless at this point, but my husband
and I cannot do one stinking thing to help/change this situation.

THE WHOLE POINT IS MY GRANDDAUGHTER IS BEING DEPRIVED OF MUCH NEEDED MEDICATION AND HAS BEEN GIVEN A DEATH SENTENCE BY QUESTCOR. SHE NEEDS THAT MEDICATION TO SURVIVE. HOW CRUEL AND INHUMANE. WITHOUT A DOUBT THERE WILL BE A SPECIAL PLACE IN HELL FOR THE PEOPLE RESPONSIBLE FOR THIS ACTION. AND A LOVELY CHILD, WITH MUCH POTENTIAL WILL BE SENSIVELY HARMED BEYOND REPAIR.
See for yourselves...
http://www.zoecadence.homestead.com/

The pain and frustration in your message comes through loud and clear. Please do not take my response as supportive of this insane pricing - it most certainly is not. The most important thing is these kids and, for you, your granddaughter. I want to clarify some of you comments and provide a suggestion.

First, the company never had approval for this product, so it was not removed or taken away for any financial gain. They tried, unsuccessfully to get approval and were denied for unknown reasons earlier this year. This is VERY important, because this has always been reimbursed by insurance as an unapproved drug.

Second, even with the astronomic price increase, it appears that insurance companies are covering the product. There was an article in the Philadelphia paper earlier this week where someone was quoted as saying they are seeing over 90% of claims approved. I realize that this may not be the case with you, however you need to do the following and put your anger and frustration to work on either getting this product approved for your granddaughter or having the company send out product at no charge. Scream and yell about the company all you want - AFTER you accomplish the most important thing.

Insurance companies will, of course, put up a defense and initially deny such a high price. They are hoping you will go away and figure out a way to bankrupt yourself in order to avoid them writing the check. Bottom line, though, is that the cost of this drug - even at this level - is relatively insignificant compared to what is being paid in aggregrate for cholesterol drugs, heart drugs, anxiety meds, antibiotics, etc. It is literally a drop in the bucket. There are only a couple thousand patients, at most, who would need this over the course of a year vs. the tens of millions on these other drugs. So keep up the pressure, contact NORD as the previous poster suggested. Their website is www.rarediseases.org

I wish you well.
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  #34  
Old 10-05-2007, 02:48 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

I'm sorry to hear about the difficult situation that you and your family are facing. I'm sure there are safety nets in place to take care of people in your position. Your efforts will be well spent lobbying your insurer and the people who work on obtaining reimbursement for this product. I would encourage you to avoid your postings on this website because it only invites sarcastic replies and insincere responses. Good luck to you and I hope you are able to get the drug that your granddaughter so desperately needs. Best Wishes!!
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  #35  
Old 10-06-2007, 01:50 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Ask your doctor about Synacthen, it is a synthetic form of Acth and cost much less.

Mike
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  #36  
Old 10-07-2007, 09:59 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

I am a mom of a little boy with Opsoclonus-Myoclonus Syndrome, OMS. It's a very rare auto-immune disorder. My son has to have an injection of Acthar everyother day. I've talked to the specialist office and there is no other alternative drug to use for my son. I want someone to explain to me how I am going to pay $56,175.00 for two 5ml bottles of Acthar for him. The price is what I was quoted by the pharmacy we have to now use. My insurance is reviewing it now. I've done the math and a single injection for my son is now $1,337.50 a shot. My son has to be on this drug for atleast 1-2 more years. It is completely outrageous to take a drug that used to cost $3,200 (which I thought was outrageous at the time) to $56,175.00. It's just not right.
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  #37  
Old 10-08-2007, 07:55 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Contact NORD...ask to speak with Maria Harden.

http://www.rarediseases.org/

Phone: 203.744.0100

Tell her you are a parent having touble paying for Acthar.
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  #38  
Old 10-08-2007, 11:29 AM
Anonymous
 
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Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
I am a mom of a little boy with Opsoclonus-Myoclonus Syndrome, OMS. It's a very rare auto-immune disorder. My son has to have an injection of Acthar everyother day. I've talked to the specialist office and there is no other alternative drug to use for my son. I want someone to explain to me how I am going to pay $56,175.00 for two 5ml bottles of Acthar for him. The price is what I was quoted by the pharmacy we have to now use. My insurance is reviewing it now. I've done the math and a single injection for my son is now $1,337.50 a shot. My son has to be on this drug for atleast 1-2 more years. It is completely outrageous to take a drug that used to cost $3,200 (which I thought was outrageous at the time) to $56,175.00. It's just not right.
Another happy customer!
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  #39  
Old 05-15-2011, 09:17 PM
Anonymous
 
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Banghead Re: Acthar Price Increase $23K a Vial

I have been in the pharmaceutical distribution business for over 24 years. At one time we purchased Acthar for $40.00 a vial from Wyeth, the innovator of the product. You thought $1,600 a vial was low, check that stat out ;-)
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  #40  
Old 05-16-2011, 08:49 AM
Anonymous
 
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Default Re: Acthar Price Increase $23K a Vial

Why is someone posting this ...old news get over it
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  #41  
Old 05-17-2011, 08:02 PM
Anonymous
 
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Default Re: Acthar Price Increase $23K a Vial

This speaks volumes about the morals and values of the people who work here!!
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  #42  
Old 05-18-2011, 08:58 PM
Anonymous
 
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Lol Re: Acthar Price Increase $23K a Vial

The truth hurts doesn't it! Wait until the government stops balance billing and write offs!
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  #43  
Old 05-19-2011, 02:34 PM
Anonymous
 
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Jester Re: Acthar Price Increase $23K a Vial

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Originally Posted by Anonymous View Post
The truth hurts doesn't it! Wait until the government stops balance billing and write offs!
So how's that Questcor short position working out for you so far? Feeling a little "squeezed" these days??
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  #44  
Old 06-18-2011, 10:48 AM
Anonymous
 
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Exclamation Re: Acthar Price Increase $23K a Vial

Questcors CEO said, "We are not in the pharmacy business - we are in the sales business." This is partially true, they sell an orphan drug put out in the 1940s to a small group of desperate people with very sick children. Questcor is really in the EXTORTION business. They do no R&D and have no other viable product.
Looking at this board, it is obvious that when Questcor employees / supporters are confronted with the reality of what a sleazy immoral operation this is, they change the subject to recent profits or how well their stock options are doing. This is not a real drug company, it's a Mickey Mouse operation designed to pump up stock prices by charging outrageous prices on a very old drug to families with sick children. This company empitomizes the absolute worst of the industry.
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  #45  
Old 08-09-2011, 07:50 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Questcors CEO said, "We are not in the pharmacy business - we are in the sales business." This is partially true, they sell an orphan drug put out in the 1940s to a small group of desperate people with very sick children. Questcor is really in the EXTORTION business. They do no R&D and have no other viable product.
Looking at this board, it is obvious that when Questcor employees / supporters are confronted with the reality of what a sleazy immoral operation this is, they change the subject to recent profits or how well their stock options are doing. This is not a real drug company, it's a Mickey Mouse operation designed to pump up stock prices by charging outrageous prices on a very old drug to families with sick children. This company empitomizes the absolute worst of the industry.
How much does a course of therapy run in Infantile spasms?
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  #46  
Old 08-09-2011, 11:29 AM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
How much does a course of therapy run in Infantile spasms?
Usually zero for patients and their parents. Insurance picks up the tab or they get it free. 100% coverage of any copayments (if there even are any) is also available for most patients/parents.
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  #47  
Old 08-09-2011, 12:33 PM
Anonymous
 
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Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Usually zero for patients and their parents. Insurance picks up the tab or they get it free. 100% coverage of any copayments (if there even are any) is also available for most patients/parents.
Zero cost to the patient, what is the cost to the insurance company? How many vials is usually needed to treat a child with infantile spasms?
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  #48  
Old 08-09-2011, 12:47 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

It is easy to see that the people have very low morals and values! They know they are ripping off sick children and our healthcare system!
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  #49  
Old 08-09-2011, 06:47 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
Zero cost to the patient, what is the cost to the insurance company? How many vials is usually needed to treat a child with infantile spasms?
It is nice that you care so much about maximizing insurance company profits. This will help ensure another $1 billion bonus for the United Healthcare CEO, like he got a couple years back.

Children and parents pay nothing for this drug. Check the facts on this company, or do you like to purposely spread misinformation on message boards?
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  #50  
Old 08-09-2011, 08:26 PM
Anonymous
 
Posts: n/a
Default Re: Acthar Price Increase $23K a Vial

Quote:
Originally Posted by Anonymous View Post
It is nice that you care so much about maximizing insurance company profits. This will help ensure another $1 billion bonus for the United Healthcare CEO, like he got a couple years back.

Children and parents pay nothing for this drug. Check the facts on this company, or do you like to purposely spread misinformation on message boards?
Really nothing? How much does medicare and private insurance pay for this product? How much does it cost to manufacture?
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