These patients deserve better

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anonymous

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Every stakeholder has different data and can't communicate with each other, it's the blind leading the blind, and they wonder why there are 600 patients that are stuck in process. Unblind the team so they can work together and solve issues blocking patients access.
 

A "team" doesn't really exist. Several silos
You have entire states not only unwilling to write this dog of a drug, but that actively lobby against its use
Look at social media. Hundreds of posts a day and not a single person responsible for putting a positive message out there. Conferences that leadership attends where they misspeak about and actively discourage use of the med and they sit there and say what a great talk it was
You have a sales force that could not sell candy to a baby and RBDs that hire the same sort of NAS over and over...
Any person with a sliver of talent is long gone
Wake up!
 
What about hiring practices? Rare disease will only take MT so far.. we need sales people. we need leaders who will treat the organization like a start-up.. we need sales people who will actually network with social workers, caseworkers, nurses, etc.. All clinical sell - Get over yourself Adam! look where it's gotten the organization in 3 years.
 
anonymous said:
that's tremendous insight

a terminal disease and patients won't get better

unless a cure comes along

that would be something better

Harvard, right?
Click to expand...
Are you suggesting this product is helpful on any level?
Are you reading what is currently in print from patients? How about the medical community?
You don’t need Harvard for this, which is obvious when you look at who’s around this place.
But just keep on with your smug self.
 
Must agree. JH left because extension data and its presentation is trash. When you’re paying a doctor and they can’t support you, you have nothing.
 


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